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ijen0311 · 5 March 2009, 12:54 PM

How is Ronan doing?

I was going to PM you but figured everyone else is wondering too..

Lion · 5 March 2009, 01:11 PM

Yes is he feeling better? Is he still on steroids? Inquiring minds want know!!!

Bisquitlips · 5 March 2009, 01:43 PM

Please keep us informed JJ!

Prayers still going out and Leah asks me about him every day.

chriseskew24 · 5 March 2009, 01:45 PM

Agreed i hope all is well JJ two capitol J's

bodybump · 5 March 2009, 03:05 PM

yeah...JJ havent updated us yet...i hope that kid is fine by now...

Trurolexer · 5 March 2009, 03:58 PM

I believe he much better now.

JJ Irani · 5 March 2009, 04:06 PM

Quote:

Originally Posted by ijen0311

How is Ronan doing?

I was going to PM you but figured everyone else is wondering too..

Thanks for asking, Jen......appreciate your concern along with the other members too!!

Good news is that he's gained back 7 lbs. since he started Prednisone a couple of weeks ago. His bleeding has stopped and his bowels are under control now.

He is more energetic than ever before, attends school and has begun to play light games. His appetite is good while his poor mother slaves away in the kitchen preparing special dietary foods only for him......loaded with almonds, honey and other goodies which he can tolerate.

So it's all looking good for now at least. Not sure what the outcome will be after the steroid therapy is stopped down the line.

Shall keep you updated. Once again, many thanks to all of you who have shown so much interest, showered so much love and also for all your prayers, good thoughts and words. All this means a helluva lot to me and the rest of my family.

Best wishes to all - JJ

bodybump · 5 March 2009, 04:41 PM

Thats good to hear JJ...do you know what triggers the symptoms??

JJ Irani · 5 March 2009, 04:46 PM

Quote:

Originally Posted by bodybump

Thats good to hear JJ...do you know what triggers the symptoms??

Any foods that he's allergic to.....example, he's highly lactose intolerant along with several other foods like tomatoes, sesame seeds, etc.

Through trial and error, we've managed to narrow it down to what he can really tolerate without bringing the house down!!

DanP · 5 March 2009, 05:33 PM

That's a relif to hear JJ. I am glad to hear your grandson is gaining his lost weight back, and getting the energy back. How is Ronan's sprit holding up? Its amazing how when a child falls ill how resillient they are to bounce back isn't it? How are his parents and the rest of the family holding up? I was wondering JJ, do you know how long he will have to be on the prednisone? After my brothers 1st heart transplant he took it for quite a while and it resulted in weight gain, and facial puffiness(I guess those are the common side effects right?). He does not take it currently as it was switched to another drug that has the similar effect to prednisone but not the side effects, witch worked out very well for him in the long run. Again thats great to hear about Ronan, and the thoughts and prayers of Bebe and I are with Ronan and your family. Thanks for the update Sir

Dan

redshirt1957 · 5 March 2009, 11:10 PM

JJ, did I mention I am a good cook? My passport says I am single when I leave the States.

Good to hear that things are headed down the right path. Keep up the research and press the Doctors for continued positive results. Most of all, give Ronan a big ole' HUG from us all. Did I mention I can cook?

Carolina · 5 March 2009, 11:21 PM

JJ, that's fantastic news!

Dan Pierce · 5 March 2009, 11:27 PM

Great news, JJ!

dP

B Square · 5 March 2009, 11:33 PM

Subexplorer · 5 March 2009, 11:45 PM

Glad to know these good news JJ!
Will keep our prayers, and wish all this nightmare your entire family suffered, will be a thing of the past very soon.
Kind regards, Abel

vapalux · 5 March 2009, 11:51 PM

Glad to hear Ronans a little better JJ. Those pounds will hopefully go on in no time.

I have been thinking how he is but as jen said I suspect you were getting a few of those but its good to hear the news.

You and your family are in my thoughts

Si

Jimbits76 · 5 March 2009, 11:58 PM

Great news Jayge....

Claire and I have put a little something in the post for him...I hope it fits with all this flipping weight he's gaining!!!!!!

J

Lion · 6 March 2009, 12:07 AM

JJ, I currently take Medrol which is a steroid but doesn't have all the bad side affects that prednisone has. It's a bit more expensive but well worth it!!!

jdc · 6 March 2009, 01:08 AM

good news you old nun hugger

kcmo · 6 March 2009, 02:32 AM

I'm SOOOO glad to hear Ronan is feeling better, JJ! Keeping my fingers crossed!

JJ Irani · 6 March 2009, 02:42 AM

Quote:

Originally Posted by DanP

That's a relif to hear JJ. I am glad to hear your grandson is gaining his lost weight back, and getting the energy back. How is Ronan's sprit holding up? Its amazing how when a child falls ill how resillient they are to bounce back isn't it? How are his parents and the rest of the family holding up? I was wondering JJ, do you know how long he will have to be on the prednisone? After my brothers 1st heart transplant he took it for quite a while and it resulted in weight gain, and facial puffiness(I guess those are the common side effects right?). He does not take it currently as it was switched to another drug that has the similar effect to prednisone but not the side effects, witch worked out very well for him in the long run. Again thats great to hear about Ronan, and the thoughts and prayers of Bebe and I are with Ronan and your family. Thanks for the update Sir

Dan

Well, Dan....thanks for asking. Ronan's energy is certainly back. There is a puffiness, but only very slight and hardly noticeable.

The Prednisone goes on for 8~10 weeks and is tapering off every week. He certainly LOOKS much better than he was a few weeks ago.

Thanks everybody for your good wishes and concern.....truly appreciated.

Cheers - JJ

DanP · 6 March 2009, 06:03 AM

8 to 10 weeks that seems to be not too bad. I think my brother was on it for some time before they switched meds
Thanks for the reply buddy

Dan

Leighton · 6 March 2009, 08:41 AM

Great news, JJ!

ratmotortom · 6 March 2009, 09:03 AM

Quote:

Originally Posted by JJ Irani

Thanks for asking, Jen......appreciate your concern along with the other members too!!

Good news is that he's gained back 7 lbs. since he started Prednisone a couple of weeks ago. His bleeding has stopped and his bowels are under control now.

He is more energetic than ever before, attends school and has begun to play light games. His appetite is good while his poor mother slaves away in the kitchen preparing special dietary foods only for him......loaded with almonds, honey and other goodies which he can tolerate.

So it's all looking good for now at least. Not sure what the outcome will be after the steroid therapy is stopped down the line.

Shall keep you updated. Once again, many thanks to all of you who have shown so much interest, showered so much love and also for all your prayers, good thoughts and words. All this means a helluva lot to me and the rest of my family.

Best wishes to all - JJ

Great news JJ.

5 March 2009, 12:54 PM	#1
ijen0311 "TRF" Member Join Date: Dec 2008 Real Name: Jen Location: Jax, FL Watch: Sea-Dweller Posts: 3,977	Question for JJ! How is Ronan doing? I was going to PM you but figured everyone else is wondering too..

5 March 2009, 01:11 PM	#2
Lion "TRF" Member Join Date: Jan 2009 Real Name: Leo Location: Midwest Watch: GMT-II 16710 PEPSI Posts: 21,461	Yes is he feeling better? Is he still on steroids? Inquiring minds want know!!! __________________ SS GMT-II 16710 PEPSI(Z-serial#) THE ONLY DIFFERENCE BETWEEN MEN AND BOYS IS THE PRICE OF THE TOYS!!! MontBlanc Meisterstuck Doue Silver Barley MontBlanc Meisterstuck Solitaire Doue Signum Proud Card Carrying Member of the Curmudgeons.....Yikes!!!

5 March 2009, 01:43 PM	#3
Bisquitlips 2024 Pledge Member Join Date: Sep 2008 Real Name: Richard Location: USA Watch: YM Deep Space Posts: 12,521	Please keep us informed JJ! Prayers still going out and Leah asks me about him every day. __________________ Rolex Yacht-Master 40mm (SS-YG / Deep Space MOP) 16623 Breitling Aerospace Titanium / 18K with UTC. Omega Speedmaster 3510.50 Oris TT1 Pro Diver Regulator 43MM

5 March 2009, 03:05 PM	#5
bodybump ⭐⭐⭐⭐⭐⭐ 2024 SubLV41 Sponsor & Boutique Seller Join Date: Sep 2008 Real Name: Oscar Location: Florida Watch: Me!!! Posts: 23,233	yeah...JJ havent updated us yet...i hope that kid is fine by now... __________________

5 March 2009, 04:41 PM	#8
bodybump ⭐⭐⭐⭐⭐⭐ 2024 SubLV41 Sponsor & Boutique Seller Join Date: Sep 2008 Real Name: Oscar Location: Florida Watch: Me!!! Posts: 23,233	Thats good to hear JJ...do you know what triggers the symptoms?? __________________

5 March 2009, 01:45 PM	#4
chriseskew24 "TRF" Member Join Date: Sep 2008 Real Name: Christopher Location: fort lauderdale Watch: Bunches Posts: 1,860	Agreed i hope all is well JJ two capitol J's

5 March 2009, 03:58 PM	#6
Trurolexer Banned Join Date: Dec 2007 Location: USA Watch: 5513MaxiI+PreComex Posts: 18,421	I believe he much better now.

5 March 2009, 05:33 PM	#10
DanP Banned Join Date: Apr 2008 Real Name: Dan P Location: Vancouver. Canada Watch: GV-U-Kno-Me :) Posts: 2,436	That's a relif to hear JJ. I am glad to hear your grandson is gaining his lost weight back, and getting the energy back. How is Ronan's sprit holding up? Its amazing how when a child falls ill how resillient they are to bounce back isn't it? How are his parents and the rest of the family holding up? I was wondering JJ, do you know how long he will have to be on the prednisone? After my brothers 1st heart transplant he took it for quite a while and it resulted in weight gain, and facial puffiness(I guess those are the common side effects right?). He does not take it currently as it was switched to another drug that has the similar effect to prednisone but not the side effects, witch worked out very well for him in the long run. Again thats great to hear about Ronan, and the thoughts and prayers of Bebe and I are with Ronan and your family. Thanks for the update Sir Dan

5 March 2009, 11:10 PM	#11
redshirt1957 "TRF" Member Join Date: Sep 2007 Real Name: Bubba Location: Bitsyville! Watch: Blue YM today! Posts: 10,053	JJ, did I mention I am a good cook? My passport says I am single when I leave the States. Good to hear that things are headed down the right path. Keep up the research and press the Doctors for continued positive results. Most of all, give Ronan a big ole' HUG from us all. Did I mention I can cook?

5 March 2009, 11:21 PM	#12
Carolina "TRF" Member Join Date: Jul 2007 Location: North Carolina Watch: it, Bubba! Posts: 6,271	JJ, that's fantastic news! __________________ . .Member #5380 .

5 March 2009, 11:27 PM	#13
Dan Pierce 2024 Pledge Member Join Date: Dec 2006 Real Name: D'OH! Location: Kentucky Watch: Rolex-1 Tudor-3 Posts: 36,217	Great news, JJ! dP __________________ TRF Member# 1668 Bass Player in TRF "AFTER DARK" Bar & NightClub Band Commander-in-Chief of The Nylon Nation The Crown & Shield Club Honorary Member of P-Club

5 March 2009, 11:33 PM	#14
B Square "TRF" Member Join Date: Sep 2008 Real Name: Boyd Location: NC Posts: 1,815	__________________ 16610M 16710Z Pepsi 16570V White

5 March 2009, 11:45 PM	#15
Subexplorer 2024 Pledge Member Join Date: Dec 2008 Real Name: Abel Location: Down South Watch: Rolex Submariner Posts: 2,234	Glad to know these good news JJ! Will keep our prayers, and wish all this nightmare your entire family suffered, will be a thing of the past very soon. Kind regards, Abel __________________ 50 Years of ROLEX Passion! Grail Rolex: 5508 c. 1959 "Bond" Sub.

5 March 2009, 11:51 PM	#16
vapalux "TRF" Member Join Date: Nov 2008 Real Name: Si Location: united kingdom Posts: 1,655	Glad to hear Ronans a little better JJ. Those pounds will hopefully go on in no time. I have been thinking how he is but as jen said I suspect you were getting a few of those but its good to hear the news. You and your family are in my thoughts Si

5 March 2009, 11:58 PM	#17
Jimbits76 "TRF" Member Join Date: Sep 2007 Location: UK Posts: 9,407	Great news Jayge.... Claire and I have put a little something in the post for him...I hope it fits with all this flipping weight he's gaining!!!!!! J

6 March 2009, 12:07 AM	#18
Lion "TRF" Member Join Date: Jan 2009 Real Name: Leo Location: Midwest Watch: GMT-II 16710 PEPSI Posts: 21,461	JJ, I currently take Medrol which is a steroid but doesn't have all the bad side affects that prednisone has. It's a bit more expensive but well worth it!!! __________________ SS GMT-II 16710 PEPSI(Z-serial#) THE ONLY DIFFERENCE BETWEEN MEN AND BOYS IS THE PRICE OF THE TOYS!!! MontBlanc Meisterstuck Doue Silver Barley MontBlanc Meisterstuck Solitaire Doue Signum Proud Card Carrying Member of the Curmudgeons.....Yikes!!!

6 March 2009, 01:08 AM	#19
jdc "TRF" Member Join Date: Jan 2008 Real Name: Martin Location: UK Posts: 7,023	good news you old nun hugger

6 March 2009, 02:32 AM	#20
kcmo "TRF" Member Join Date: Jan 2007 Real Name: Karis Location: USA Posts: 19,377	I'm SOOOO glad to hear Ronan is feeling better, JJ! Keeping my fingers crossed!

6 March 2009, 06:03 AM	#22
DanP Banned Join Date: Apr 2008 Real Name: Dan P Location: Vancouver. Canada Watch: GV-U-Kno-Me :) Posts: 2,436	8 to 10 weeks that seems to be not too bad. I think my brother was on it for some time before they switched meds Thanks for the reply buddy Dan

6 March 2009, 08:41 AM	#23
Leighton "TRF" Member Join Date: Nov 2007 Real Name: Leighton Location: So. California Watch: SS GMT IIc Posts: 1,366	Great news, JJ! __________________ GMT MASTER II 116710N

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